A workshop organised for people with personal experience of diabetes and pregnancy and healthcare professionals to share their experiences.
The workshop is part of a DRWF-funded study inviting women with diabetes to provide their feedback to improve available information about diabetes and pregnancy.
Researchers at the University of Oxford are calling for women, their families and healthcare professionals to help prioritise research that will benefit women and families affected by diabetes and pregnancy.
Around 38,000 (5%) of women giving birth in the UK each year are affected by diabetes and rates are increasing.
Researchers said: “More research is needed to help prevent or manage diabetes in the time before, during and after pregnancy. Through this project, we aim to help support research in the areas that matter most to women, their families and healthcare professionals.
“Last year, women, their families and friends, and healthcare professionals put forward their three top questions about pregnancy with diabetes of any type. Over 460 people sent in over 1,400 questions.
“From these questions, we created a long-list of questions that need further research. We invited people to pick the 10 questions most important to them. The questions that were picked most often will be taken through to our final workshop.”
The workshop is taking place online via Zoom from 10am – 4pm on Friday, 2nd October 2020, with registration from 9:30am.
For the final workshop researchers are looking for a total of 24 people from across the following groups:
• Women with lived experience of planning pregnancy and pregnancy with diabetes of any type
• Partners, family members and friends who have supported women with diabetes through pregnancy, or planning pregnancy
• Healthcare professionals (diabetes specialism is not necessary)
Researchers added: “The aim of the workshop is for people with personal experience of diabetes and pregnancy and healthcare professionals to jointly agree the top 10 questions for future research in diabetes and pregnancy.
“We would like a good discussion! So we need people who are prepared to share their views and experiences, and who will listen to and respect the views and experiences of others in the group.”
Dr Goher Ayman, Diabetes & Pregnancy Co-Lead at the National Perinatal Epidemiology Unit (NPEU), Nuffield Department of Population Health, University of Oxford, said: “We aim to bring together people with a range of different experiences and perspectives and we would very much like to have further representation.”
The following experts are being sought to participate:
- Diabetes specialist nurses (1 place left)
- Diabetologists (1 place left)
- Psychologists/Social care (2 places left)
- GPs/Community care (1 place left)
To apply complete the short online form here by 6th September 2020.
If you would like any further information please contact the team by emailing email@example.com or call 01865 289 757
Dr Eleanor Kennedy, DRWF Research Manager, said: “Diabetes and pregnancy is an important issue to many women, whether it is pregestational diabetes or pre-existing diabetes in pregnancy or so-called gestational diabetes, such as diabetes that you are diagnosed with during pregnancy.
“The risks to the mother and baby during pregnancy are significant and it is vital that women with diabetes who are pregnant or who are planning a family can input to and be helped through research like this to understand as much as possible about their own health and wellbeing and that of their baby too.”
The project is funded by the Diabetes Research & Wellness Foundation, the University of Oxford John Fell Fund and the Nuffield Department of Population Health. Project partners are: the Diabetes Research & Wellness Foundation, Diabetes UK, the James Lind Alliance, JDRF the type 1 diabetes charity, the Oxford Biomedical Research Centre, and the Oxford Centre for Diabetes, Endocrinology and Metabolism.
To find out more or participate in the project, please visit here. The project team are looking for input from those affected by all types of diabetes, including pregnancy with pre-existing diabetes, and gestational diabetes which develops during pregnancy.
Support DRWF by making a donation here
Find out more about DRWF-funded research here
Read Latest changes in guidance in shielding and protecting people at high risk of Covid-19 including people with diabetes
DRWF operations during the Covid-19 health crisis
The DRWF team is now working remotely. Covid-19 guidance, particularly where it aligns or impacts with diabetes guidance, is shared as quickly as possible through the DRWF website and social media channels with the aim of making it as easy to understand as possible and a reliable source of latest news.
To receive the charity’s latest bulletins as they become available, please sign up here
Subscribe to Diabetes Wellness News here