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Patient experts on living with type 2 diabetes and kidney disease wanted

Patient experts on living with type 2 diabetes and kidney disease wanted

NICE are looking for patient experts for a Scientific Advice meeting on type 2 diabetes and chronic kidney disease at an event in London next month.

Published: Jan 29, 2020
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The National Institute for Health and Care Excellence (NICE) are looking for one or two patient experts, that might be a person living with the condition, carer or member/volunteer of a patient organisation, for a Scientific Advice meeting about type 2 diabetes and chronic kidney disease.

NICE Scientific Advice is the process whereby pharmaceutical companies pay NICE a consultation fee to be given advice about drug design early on in the development of a treatment.

The Scientific Advice meeting on type 2 diabetes and chronic kidney disease will take place in London on Wednesday, 12th February (travel expenses and honorarium are covered).

The role of the expert panel is to advise on a developer’s plans for generating evidence for their product to help them meet the requirements for later evaluation for cost-effectiveness at NICE, when the company brings the product to market.

NICE require that patient experts should have experience that meets the following criteria:

  • The person must be diagnosed with type 2 diabetes and have developed chronic kidney disease
  • The person must not have a prior kidney transplant or other be diagnosed with any other kidney diseases
  • The person must not have had a form of heart failure or any other cardiovascular event in the past 3 months 
  • The person must not have a history of diabetic ketoacidosis or diagnosis of type 1 diabetes

NICE define the role of the patient expert as an individual who has or has had the condition being discussed.

Alternatively, the patient expert could be somebody who knows the condition well because they are a carer or family member of somebody with the condition or part of a patient group supporting patients with the condition.

Dr Sarah Scott, Public Involvement Adviser, Public Involvement Programme at NICE, said: “We will be looking for their experience of the condition, current treatment of the condition and their opinion of the potential new treatment.”

If provisionally selected the scientific advice team will have an initial phone call with the potential patient experts, who would be required to:

  • Read documentation for the briefing call and the face to face meeting;
  • Take part in a pre-meeting briefing call (date to be arranged)
  • Attend the main face-to-face meeting on Wednesday, 12th February, at the NICE London office
  • Comment on the report that is produced afterwards
If you are interested or have any questions please contact Sarah Scott at sarah.scott@nice.org.uk before Monday, 3rd February
Category: Get involved
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